"Welcome to the Kylie Johnston Lung Cancer Network website - an initiative of The Australian Lung Foundation. Our network aims to provide support, hope and understanding to Australians living with Lung cancer.

The Kylie Johnston Lung Cancer Network is committed to giving people touched by lung cancer a voice and raising public awareness of the urgent need for more lung cancer information and support services."
- William Darbishire, CEO, The Australian Lung Foundation

Kylie Johnston was a non smoking, healthy 27 year old woman when she was diagnosed with lung cancer. The Australian Lung Foundation worked with Kylie during her journey with lung cancer to establish a patient carer support initiative - The Kylie Johnston Lung Cancer Network.

An energetic consumer advocate, Kylie worked tirelessly to improve patient/carer support and raise awareness about lung cancer in the general community. Sadly, Kylie passed away in November 2007.

Kylie's widower, Nick Johnston, continues to help steer the Kylie Johnston Lung Cancer Network's fundraising and awareness raising activities as a committee member of the Network's management committee.

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Karen Munro with Assoc. Professor David Ball from Peter MacCallum Cancer Centre

Karen Munro with SBS cycling commentator Matt Keenan

Kaylene Chaproniere, owner of Chilli Cycles of Warragal, hosted a Tour de France fundraising evening in June in support of local cyclist Karen Munro, 39, a superfit never smoker who has recently been diagnosed with lung cancer.

"I was overwhelmed by the community spirit that got behind our evening and the level of local support for Karen”, Kaylene Chaproniere said. “Local businesses including Lean and Green, Feelgood Gym, Prepare to Party, The Press Cellars, Mangowood and The Party Man were incredibly generous and that why we raised so much money” she said.

100 guests helped raise a staggering $8,000 for The Lung Foundation’s Kylie Johnston Lung Cancer Network. Guest speakers included SBS cycling commentor, Matt Keenan, who gave behind the scenes anecdotes on The Tour de France and took questions from guests on the race and cycling in general.

Chair of Lung Cancer Service at The Peter MacCallum Cancer Centre in Melbourne, Associate Professor, David Ball, spoke of the disparity in funding in the area of lung cancer research which attracts less funding than both prostate and breast cancer while lung cancer is the biggest cancer killer in Australia.
Click here for Karen’s story.

If you would like to host a fundraising event for The Kylie Johnston Lung Cancer Network please don’t hesitate to contact kerrie@lungfoundation.com.au or phone 07 3251 3641.

 

Lung Cancer, Understanding, Managing, Living looks at what happens when a person is diagnosed with lung cancer through to available treatments and living with cancer. It provides expert medical information from a team of health professionals involved in caring for people with lung cancer, as well as experiences from people living with lung cancer. If you or someone you love has lung cancer this DVD may help you understand and make sense of what is happening, and what others have experienced. It contains information split into 19 short chapters: 01 Introduction 02 Diagnosis 03 Staging the Disease 04 Multi-disciplinary Team 05 Understanding Information 06 Allied Health 07 Living with Cancer 08 Surgery 09 Quitting Smoking 10 Radiotherapy 11 Chemotherapy 12 Symptoms 13 Prognosis 14 Palliative Treatments 15 Carers 16 Complementary Treatments 17 Clinical Trials and New Treatments 18 Life After Treatment (incl. contacts and websites) 19 More information (incl. Bronchoscopy, Lobectomy and Palliative Surgery) Click here or image of DVD to view Chapter 01 - Introduction Click here to view all chapters Click here to order your own copy of the DVD

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